$21,769
raised
Goal: $20,000

Help spread the word

About this fundraiser:

Throughout the month of May, we invite you to join A Foundation Building Strength in our Share-A-Thon, a simple yet powerful way to spread awareness and bring hope to families living with Nemaline Myopathy. We're asking you to pledge a flat donation or a small amount per social media share (up to 500 shares!) to fuel crucial NM research. On May 26th - 31st keep an eye out for our special Share-A-Thon posts on Instagram and Facebook and share these posts to spread the word about this little-known condition. Every share gets us that much closer to discovering cutting-edge treatments! At the end of NM Awareness Day, May 31st, we'll tally the shares, turning your clicks into critical support for a brighter future!

ABOUT NEMALINE MYOPATHY AND A FOUNDATION BUILDING STRENGTH:

Imagine the difficulty of navigating a world where breathing, speaking, and moving freely can be a profound struggle. This is the reality for many of the remarkable children and adults living with Nemaline Myopathy, a rare congenital neuromuscular disease. A Foundation Building Strength is the only 501(c)3 organization solely dedicated to finding treatments for Nemaline Myopathy, while providing support and resources to these resilient individuals. Currently, there are no treatments for NM, making every breath, every word, every movement a testament to their strength.

Your donations will help pay for:

  • Funding Critical Nemaline Myopathy Research

All participants:

$21,769 raised
of $20,000 goal
Raised $7,297
Raised $5,541
Raised $1,880
Raised $1,406
Raised $1,060
Raised $530
Raised $520
Raised $470
Raised $460
Raised $430
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Top Donations

$1,016
Sarawak
$1/share
Matt & Kelly Lloyd
$500
Savage Family

Go Liv!

$500
David Horvitz
$500
Andrew Powell

Go Liv!!!