Help spread the word

Bodhi

A Foundation Building Strength

Bodhi was born with Nemaline Myopathy, and every day, his dad and I are learning, adapting, and growing alongside him. Though he’s not able to bear weight on his legs, he gets around using a little rolling stool — and let me tell you, he flies! Watching him navigate the world with such joy and determination is one of the most incredible things we've ever witnessed.

We’re especially thrilled that our son will soon be starting adaptive preschool — a big step in his journey toward confidence and independence.

A Foundation Building Strength is working to fund research and discover treatments for children like ours. This mission has become deeply personal for our family. Whether you donate 5 cents or simply share our link, you're helping give kids like Bodhi a future filled with possibility, mobility, and opportunity. Every bit counts — and we're so grateful.

About this fundraiser:

Throughout the month of May, we invite you to join A Foundation Building Strength in our Share-A-Thon, a simple yet powerful way to spread awareness and bring hope to families living with Nemaline Myopathy. We're asking you to pledge a flat donation or a small amount per social media share (up to 500 shares!) to fuel crucial NM research. On May 26th - 31st keep an eye out for our special Share-A-Thon posts on Instagram and Facebook and share these posts to spread the word about this little-known condition. Every share gets us that much closer to discovering cutting-edge treatments! At the end of NM Awareness Day, May 31st, we'll tally the shares, turning your clicks into critical support for a brighter future!

ABOUT NEMALINE MYOPATHY AND A FOUNDATION BUILDING STRENGTH:

Imagine the difficulty of navigating a world where breathing, speaking, and moving freely can be a profound struggle. This is the reality for many of the remarkable children and adults living with Nemaline Myopathy, a rare congenital neuromuscular disease. A Foundation Building Strength is the only 501(c)3 organization solely dedicated to finding treatments for Nemaline Myopathy, while providing support and resources to these resilient individuals. Currently, there are no treatments for NM, making every breath, every word, every movement a testament to their strength.